Monday, March 14, 2011

Passing Time!

We were out for a walk and took a quick break. Tim had been walking for 3 straight hours with Ethan while I went to clean out our room and do some laundry at the Ronald McDonald House. We decided to give up our room their as we didn't have anyone staying with us for a while. There is a large waiting list of people trying to get in so I am sure someone else will appreciate our room. Ethan has been on isolation for what seems like forever, so once he got a taste of the real world he didn't want to go back to his own room....he would just scream and point to the door saying "go."

Having a breakfast picnic on the floor. Ethan was so happy that dad stayed another day with him...Tim planned on heading home today for class but Ethan wouldn't let him go. Tim also wanted to stay a little longer to see Ethan's grafts on his right foot as the nurses were planning on changing his dressings. We eventually saw his foot and it looked great, all things considered. I sure hope we are on the home stretch!

He is such a cheeseball. On top of everything else going on right now, Ethan has decided to cut his two bottom teeth. He has been drooling and chewing on everything, as well as throwing some major fits! He has quit sleeping all together and I am having a hard time hiding the bags under my eyes now. Tim has been such a great help this weekend, I don't think I could have made it without him! He has been very patient with Ethan in the night but is starting to see my frustrations with Ethan's horrible sleeping patterns. The pain control team came in today and decided they would try a new drug on Ethan to help him sleep and stop itching. Its a drug normally used to help control seizures, an anti-itch drug, and will help to relax his muscles. If that doesn't work tonight I will be giving him some melatonin tomorrow...somethings gotta work!!! We did however slowly wean him off of morphine completely and he is only on a low dose of Ketamine (his pain drugs).

Movie Night! This hospital has thought of everything you could imagine and tonight was movie night. On the fourth floor they have a large movie theatre where we went to watch "Megamind," a hilarious kids movie that I would recommend you see. They provided popcorn, juice and treats, and it was fun to hear all the kids giggles. There was a very special spirit in the room as all these little children who were sick and dressed in their hospital attire, wheeled into the theatre. This was Ethans first movie and he sat through the entire thing. He loved every minute!

Ethan on our way back to our room from the theatre. Tim and I have now had many comments such as this,"She is soo cute!" or "What a little doll, she is just precious!" It makes us laugh but I guess he is kind of a "pretty" boy. When Hallie and Ava were little everyone thought they were boys because they had no hair, and now everyone thinks our boy is a girl...I guess we can't win!